Pediatric Research

Allison King, M.D., M.P.H., Ph.D. king_a@wustl.edu

Professor of Pediatrics, Hematology and Oncology

Professor, Hematology

Professor, Occupational Therapy

Professor, Surgery

Professor, Education

Researcher, Patient Oriented Research Unit

Occupational Therapy Surgery Hematology and Oncology Education Hematology

phone:

Research Interests

Dr. King’s research focuses on factors that impact a child’s opportunity to learn. From a biological standpoint, she studies how chronic diseases such as sickle cell disease or brain tumors alter cognition. In addition, Dr. King studies the environment’s influence on children’s development and participation. The goal of this work is to determine targets for intervention that will have the greatest impact on development and education. Methods include psychological and performance based assessment, environmental assessments via home or public health measures, and epidemiological tools to incorporate medical and social science measures. Collaborators are from occupational therapy, pediatrics, public health, education, social work, neurology, psychology, and radiology.

Education

BS, Washington University, 1992
MD, University of Missouri, 1996
MPH, Saint Louis University, 2003
PhD, With Distinction, Saint Louis University, 2015

Training

Resident in Pediatrics, St. Louis Children's Hospital and Washington University School of Medicine, 1996 - 1999
Fellow in Pediatrics, Division of Hematology and Oncology, St. Louis Children's Hospital and Washington University School of Medicine, 2000 - 2003
Visiting Fellow, Children's National Medical Center, 2002 - 2002

Licensure and Board Certification

1996 - PresMO, Physician - Permanent Licensure
1996 - PresAmerican Board of Pediatrics
1998 - PresNational Board of Medical Examiners
2005 - PresPediatric Hematology and Oncology, American Board of Pediatrics

Honors and Awards

American Heart Association Post Doctoral Fellowship Award, 2003 - 2004
National Institutes of Health Pediatric Research Loan Repayment Award, 2003 - 2006
Jacob Javits Junior Investigator Award, 2005 - 2005
ASH Clinical Research Training Institute, 2005 - 2006
ASH Scholar Award, 2009 - 2014
Washington University’s Gerry and Bob Virgil Ethic of Service Award, 2015
American Pediatric Society, 2018
Faculty Member, Alpha Omega Alpha, 2019
Outstanding Faculty Mentor Award, Washington University in St. Louis, 2019

Selected Publications view all (101)

Publication Co-Authors

Fields, Melanie

David H. Gutmann, MD, PhD, FAAN

Shalini Shenoy, M.D.

Linda Manwaring

Monica Hulbert, M.D.

Joshua B. Rubin, M.D., Ph.D.

David B. Wilson, M.D., Ph.D.

Cecelia Calhoun

Kristin Guilliams, MD MSCI

Abby Hollander, M.D.

Robert J. Hayashi, M.D.

1.	Blaisdell LL, Zellner JA, King AA, Faustman E, Wilhelm M, Hudak ML, Annett RD. The National Children's Study: Recruitment Outcomes Using an Enhanced Household-Based Approach. Pediatrics. 2016;137 Suppl 4:S219-30. doi:10.1542/peds.2015-4410C PMID:27251868
2.	Drazen CH, Abel R, Gabir M, Farmer G, King AA. Prevalence of Developmental Delay and Contributing Factors Among Children With Sickle Cell Disease. Pediatr Blood Cancer. 2016;63(3):504-10. doi:10.1002/pbc.25838 PMID:26575319
3.	King AA, Kamani N, Bunin N, Sahdev I, Brochstein J, Hayashi RJ, Grimley M, Abraham A, Dioguardi J, Chan KW, Douglas D, Adams R, Andreansky M, Anderson E, Gilman A, Chaudhury S, Yu L, Dalal J, Hale G, Cuvelier G, Jain A, Krajewski J, Gillio A, Kasow KA, Delgado D, Hanson E, Murray L, Shenoy S. Successful matched sibling donor marrow transplantation following reduced intensity conditioning in children with hemoglobinopathies. Am J Hematol. 2015;90(12):1093-8. PMID:26348869
4.	Yarboi J, Compas BE, Brody GH, White D, Rees Patterson J, Ziara K, King A. Association of social-environmental factors with cognitive function in children with sickle cell disease. Child Neuropsychol. 2015;1-18. doi:10.1080/09297049.2015.1111318 PMCID:PMC4867297 PMID:26568287
5.	Housten AJ, Abel RA, Dadekian J, Schwieterman K, Jason D, King AA. Youth with Sickle Cell Disease: Genetic and Sexual Health Education Needs. Am J Health Behav. 2015;39(6):856-65. doi:10.5993/AJHB.39.6.13 PMCID:PMC4741381 PMID:26450553
6.	Andreotti C, King AA, Macy E, Compas BE, DeBaun MR. The Association of Cytokine Levels With Cognitive Function in Children With Sickle Cell Disease and Normal MRI Studies of the Brain. J Child Neurol. 2015;30(10):1349-53. doi:10.1177/0883073814563140 PMCID:PMC4466214 PMID:25512362
7.	Beverung LM, Strouse JJ, Hulbert ML, Neville K, Liem RI, Inusa B, Fuh B, King A, Meier ER, Casella J, DeBaun MR, Panepinto JA, SIT trial investigators. Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy. Am J Hematol. 2015;90(2):139-43. doi:10.1002/ajh.23877 PMCID:PMC4304929 PMID:25345798
8.	Abel RA, Cho E, Chadwick-Mansker KR, D'Souza N, Housten AJ, King AA. Transition Needs of Adolescents With Sickle Cell Disease. Am J Occup Ther. 2015;69(2):6902350030p1-5. doi:10.5014/ajot.2015.013730 PMCID:PMC4480057 PMID:26122692
9.	King AA, Rodeghier MJ, Panepinto JA, Strouse JJ, Casella JF, Quinn CT, Dowling MM, Sarnaik SA, Thompson AA, Woods GM, Minniti CP, Redding-Lallinger RC, Kirby-Allen M, Kirkham FJ, McKinstry R, Noetzel MJ, White DA, Kwiatkowski JK, Howard TH, Kalinyak KA, Inusa B, Rhodes MM, Heiny ME, Fuh B, Fixler JM, Gordon MO, DeBaun MR. Silent cerebral infarction, income, and grade retention among students with sickle cell anemia. Am J Hematol. 2014;89(10):E188-92. doi:10.1002/ajh.23805 PMCID:PMC4261188 PMID:25042018
10.	Widemann BC, Babovic-Vuksanovic D, Dombi E, Wolters PL, Goldman S, Martin S, Goodwin A, Goodspeed W, Kieran MW, Cohen B, Blaney SM, King A, Solomon J, Patronas N, Balis FM, Fox E, Steinberg SM, Packer RJ. Phase II trial of pirfenidone in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas. Pediatr Blood Cancer. 2014;61(9):1598-602. doi:10.1002/pbc.25041 PMID:24753394

1.	Luo L, King AA, Carroll Y, Baumann AA, Brambilla D, Carpenter CR, Colla J, Gibson RW, Gollan S, Hall G, Klesges L, Kutlar A, Lyon M, Melvin CL, Norell S, Mueller M, Potter MB, Richesson R, Richardson LD, Ryan G, Siewny L, Treadwell M, Zun L, Armstrong-Brown J, Cox L, Tanabe P. Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study. JMIR Res Protoc. 2021;10(4):e24818. PMID:33861209
2.	Saulsberry-Abate AC, Partanen M, Porter JS, Podila PSB, Hodges JR, King AA, Wang WC, Schreiber JE, Zhao X, Kang G, Jacola LM, Hankins JS. Cognitive performance as a predictor of healthcare transition in sickle cell disease. Br J Haematol. 2021. PMID:33570182
3.	Knight LMJ, King AA, Strouse JJ, Tanabe P. Pediatric Neurodevelopmental Delays in Children 0 to 5 Years of Age With Sickle Cell Disease: A Systematic Literature Review. J Pediatr Hematol Oncol. 2021. PMID:33560086
4.	Hoyt CR, L'Hotta AJ, Bauer AH, Chang CH, Varughese TE, Abel RA, King AA. Activity competence among infants and toddlers with developmental disabilities: Rasch analysis of the Infant Toddler Activity Card Sort (ITACS). J Patient Rep Outcomes. 2021;5(1):14. PMCID:PMC7818375 PMID:33475869
5.	Fields ME, Mirro AE, Guilliams KP, Binkley MM, Gil Diaz L, Tan J, Fellah S, Eldeniz C, Chen Y, Ford AL, Shimony JS, King AA, An H, Smyser CD, Lee JM. Functional Connectivity Decreases with Metabolic Stress in Sickle Cell Disease. Ann Neurol. 2020;88(5):995-1008. PMCID:PMC7592195 PMID:32869335
6.	Hodges JR, Phillips SM, Norell S, Nwosu C, Khan H, Luo L, Badawy SM, King A, Tanabe P, Treadwell M, Rojas Smith L, Calhoun C, Hankins JS, Porter J. Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study. Blood Adv. 2020;4(18):4463-4473. PMCID:PMC7509876 PMID:32941646
7.	L'Hotta AJ, Hoyt CR, Lindsey T, Abel RA, Chih-Hung C, King AA.. Validation of the fine motor subtest of the Bayley‐III with children with sickle cell disease using Rasch analysis Child Care Health Dev. 2020;46(5):576-584. PMID:32599661
8.	Linton EA, Goodin DA, Hankins JS, Kanter J, Preiss L, Simon J, Souffront K, Tanabe P, Gibson R, Hsu LL, King A, Richardsona LD, Glassberg JA, Sickle Cell Disease Implementation Consortium.. A Survey-Based Needs Assessment of Barriers to Optimal Sickle Cell Disease Care in the Emergency Department. Ann Emerg Med. 2020;76(3S):S64-S72. PMCID:PMC7511000 PMID:32928465
9.	Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M, Sickle Cell Disease Implementation Consortium.. Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium. Am J Hematol. 2020;95(9):1066-1074. PMID:32449965
10.	Kanter J, Smith WR, Desai PC, Treadwell M, Andemariam B, Little J, Nugent D, Claster S, Manwani DG, Baker J, Strouse JJ, Osunkwo I, Stewart RW, King A, Shook LM, Roberts JD, Lanzkron S. Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects. Blood Adv. 2020;4(16):3804-3813. PMCID:PMC7448595 PMID:32785684
11.	Faro EZ, Shook L, Treadwell MJ, King AA, Whiteman LN, Ivy ED, Hulihan M, Kavanagh PL, Selk S, Oyeku S, Berns SD. A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions. Public Health Rep. 2020;33354920935068. PMID:32639897
12.	Glassberg JA, Linton EA, Burson K, Hendershot T, Telfair J, Kanter J, Gordeuk VR, King AA, Melvin CL, Shah N, Hankins JS, Epié AY, Richardson LD, Sickle Cell Disease Implementation Consortium.. Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry. Orphanet J Rare Dis. 2020;15(1):178. PMID:32635939
13.	Partanen M, Kang G, Wang WC, Krull K, King AA, Schreiber JE, Porter JS, Hodges J, Hankins JS, Jacola LM. Association between hydroxycarbamide exposure and neurocognitive function in adolescents with sickle cell disease. Br J Haematol. 2020;189(6):1192-1203. PMID:32103506
14.	Varughese TE, Hoyt CR, L'Hotta AJ, Ikemenogo PA, Howdeshell SG, Housten AJ, Abel RA, King AA. Stress and the Home Environment in Caregivers of Children with Sickle Cell. J Pediatr Psychol. 2020;45(5):521-529. PMID:32232470
15.	Schulz GL, Hayashi S, Spence A, Lieu J, King A, Hayashi RJ, Mohrmann C. Patient and Parent Decision-Making in the Setting of Chemotherapy-Induced Sensorineural Hearing Loss. Ear Hear. 2020. PMID:32427742
16.	Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M. Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care. JAMA Netw Open. 2020;3(5):e206016. PMCID:PMC7260622 PMID:32469413
17.	DeBaun MR, Jordan LC, King AA, Schatz J, Vichinsky E, Fox CK, McKinstry RC, Telfer P, Kraut MA, Daraz L, Kirkham FJ, Murad MH. American Society of Hematology 2020 guidelines for sickle cell disease: prevention, diagnosis, and treatment of cerebrovascular disease in children and adults. Blood Adv. 2020;4(8):1554-1588. PMCID:PMC7189278 PMID:32298430
18.	L'Hotta AJ, Varughese TE, Lyons KD, Simon L, King AA. Assessments used to measure participation in life activities in individuals with cancer: a scoping review. Support Care Cancer. 2020. PMID:32285262
19.	King AA, Vesely SK, Vettese E, Cook S, Cuker A, Stock W, Homer M, Fritz J, Sung L. Impact of gender and caregiving responsibilities on academic success in hematology. Blood Adv. 2020;4(4):755-761. PMCID:PMC7042991 PMID:32097459
20.	Barnes JM, Brown DS, Harris JK, King AA, Johnson KJ. Impact of the affordable care act dependent coverage provision on young adult cancer patient insurance coverage by sociodemographic and economic characteristics. Cancer Causes Control. 2020;31(1):33-42. PMID:31696421
21.	Hoyt CR, Fernandez JD, Varughese TE, Grandgeorge E, Manis HE, O'Connor KE, Abel RA, King AA. The Infant Toddler Activity Card Sort: A Caregiver Report Measure of Children's Occupational Engagement in Family Activities and Routines. OTJR (Thorofare N J). 2020;40(1):36-41. PMID:31161868
22.	Farrell AT, Panepinto J, Carroll CP, Darbari DS, Desai AA, King AA, Adams RJ, Barber TD, Brandow AM, DeBaun MR, Donahue MJ, Gupta K, Hankins JS, Kameka M, Kirkham FJ, Luksenburg H, Miller S, Oneal PA, Rees DC, Setse R, Sheehan VA, Strouse J, Stucky CL, Werner EM, Wood JC, Zempsky WT. End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain. Blood Adv. 2019;3(23):3982-4001. PMCID:PMC6963237 PMID:31809538
23.	Yarboi J, Prussien KV, Bemis H, Williams E, Watson KH, McNally C, Henry L, King AA, DeBaun MR, Compas BE. Responsive Parenting Behaviors and Cognitive Function in Children With Sickle Cell Disease. J Pediatr Psychol. 2019;44(10):1234-1243. PMCID:PMC6823101 PMID:31579920
24.	Newman RM, Alfano CM, Radomski MV, Pergolotti M, Wolf TJ, Sleight AG, Bryant AL, Voelbel GT, de Moor JS, Nitkin R, Daniels E, Braveman B, Walker RK, Williams GR, Winters-Stone KM, Cheville AL, Campbell SE, Lawlor MC, King AA, Ness KK, Srivastava P, Lyons KD. Catalyzing Research to Optimize Cancer Survivors' Participation in Work and Life Roles. OTJR (Thorofare N J). 2019;39(4):189-196. PMID:31046601
25.	Hood AM, Reife I, King AA, White DA. Brief Screening Measures Identify Risk for Psychological Difficulties Among Children with Sickle Cell Disease. J Clin Psychol Med Settings. 2019. PMID:31463865
26.	Hood AM, King AA, Fields ME, Ford AL, Guilliams KP, Hulbert ML, Lee JM, White DA. Higher executive abilities following a blood transfusion in children and young adults with sickle cell disease. Pediatr Blood Cancer. 2019;66(10):e27899. doi:10.1002/pbc.27899 PMCID:PMC6707832 PMID:31267645
27.	Calhoun CL, Abel RA, Pham HA, Thompson S, King AA. Implementation of an educational intervention to optimize self-management and transition readiness in young adults with sickle cell disease. Pediatr Blood Cancer. 2019;66(7):e27722. PMCID:PMC6529244 PMID:30907500
28.	Harris KM, Dadekian JN, Abel RA, Jones B, Housten A, Ddamulira B, Chadwick-Mansker K, King AA. Increasing Educational Attainment in Adolescents with Sickle Cell Disease. Soc Work Public Health. 2019;1-15. PMID:31258020
29.	Barnes JM, Harris JK, Brown DS, King A, Johnson KJ. Impacts of the Affordable Care Act Dependent Coverage Provision on Young Adults With Cancer. Am J Prev Med. 2019;56(5):716-726. PMID:30898535
30.	Hauff M, Abel R, Hersh J, Isenberg J, Spoljaric D, Hayashi RJ, King AA. Adolescent survivors' information needs for transitions to postsecondary education and employment. Pediatr Blood Cancer. 2019;66(4):e27547. PMID:30408306
31.	Salloum R, Chen Y, Yasui Y, Packer R, Leisenring W, Wells E, King A, Howell R, Gibson TM, Krull KR, Robison LL, Oeffinger KC, Fouladi M, Armstrong GT. Late Morbidity and Mortality Among Medulloblastoma Survivors Diagnosed Across Three Decades: A Report From the Childhood Cancer Survivor Study. J Clin Oncol. 2019;JCO1800969. PMID:30730781
32.	King AA, McKinstry RC, Wu J, Eapen M, Abel R, Varughese T, Kamani N, Shenoy S. Functional and Radiologic Assessment of the Brain after Reduced-Intensity Unrelated Donor Transplantation for Severe Sickle Cell Disease: Blood and Marrow Transplant Clinical Trials Network Study 0601. Biol Blood Marrow Transplant. 2019. PMID:30639825
33.	DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS, Sickle Cell Disease Implementation Consortium.. The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease. Am J Hematol. 2018;93(12):E391-E395. PMID:30203558
34.	Schuele K, Bennett AE, Varughese T, Abel R, Reichenbacher C, Green K, King AA. Information Needs Regarding Cognitive Late Effects of Caregivers of Central Nervous System Tumor Survivors. OTJR (Thorofare N J). 2018;1539449218809943. PMID:30417736
35.	Hankins JS, Estepp JH, Hodges JR, Villavicencio MA, Robison LL, Weiss MJ, Kang G, Schreiber JE, Porter JS, Kaste SC, Saving KL, Bryant PC, Deyo JE, Nottage KA, King AA, Brandow AM, Lebensburger JD, Adesina O, Chou ST, Zemel BS, Smeltzer MP, Wang WC, Gurney JG. Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood. Pediatr Blood Cancer. 2018;65(9):e27228. PMID:29797644
36.	Shenoy S, Gaziev J, Angelucci E, King A, Bhatia M, Smith A, Bresters D, Haight AE, Duncan CN, de la Fuente J, Dietz AC, Baker KS, Pulsipher MA, Walters MC. Late Effects Screening Guidelines after Hematopoietic Cell Transplantation (HCT) for Hemoglobinopathy: Consensus Statement from the Second Pediatric Blood and Marrow Transplant Consortium International Conference on Late Effects after Pediatric HCT. Biol Blood Marrow Transplant. 2018;24(7):1313-1321. PMID:29653206
37.	Baumann AA, Belle SH, James A, King AA, Sickle Cell Disease Implementation Consortium.. Specifying sickle cell disease interventions: a study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC). BMC Health Serv Res. 2018;18(1):500. PMCID:PMC6020469 PMID:29945631
38.	King AA. Children with sickle cell disease: the case for developmental screening. Dev Med Child Neurol. 2018;60(5):443-444. PMID:29516469
39.	Berg C, King A, Edwards DF. Mentoring Program for Young Adults with Sickle Cell Disease. Occup Ther Health Care. 2018;32(2):124-136. PMID:29533685
40.	Choudhury NA, DeBaun MR, Rodeghier M, King AA, Strouse JJ, McKinstry RC. Silent cerebral infarct definitions and full-scale IQ loss in children with sickle cell anemia. Neurology. 2018;90(3):e239-e246. PMCID:PMC5772160 PMID:29263226
41.	King AA, Baumann AA. Sickle cell disease and implementation science: A partnership to accelerate advances. Pediatr Blood Cancer. 2017;64(11). PMCID:PMC6026013 PMID:28556441
42.	Fay AJ, King AA, Shimony JS, Crow YJ, Brunstrom-Hernandez JE. Treatment of Leukoencephalopathy With Calcifications and Cysts With Bevacizumab. Pediatr Neurol. 2017;71:56-59. PMCID:PMC5949049 PMID:28424147
43.	King AA, Seidel K, Di C, Leisenring WM, Perkins SM, Krull KR, Sklar CA, Green DM, Armstrong GT, Zeltzer LK, Wells E, Stovall M, Ullrich NJ, Oeffinger KC, Robison LL, Packer RJ. Long-term neurologic health and psychosocial function of adult survivors of childhood medulloblastoma/PNET: a report from the Childhood Cancer Survivor Study. Neuro Oncol. 2017;19(5):689-698. PMCID:PMC5464442 PMID:28039368
44.	Shenoy S, Angelucci E, Arnold SD, Baker KS, Bhatia M, Bresters D, Dietz AC, De La Fuente J, Duncan C, Gaziev J, King AA, Pulsipher MA, Smith AR, Walters MC. Current Results and Future Research Priorities in Late Effects after Hematopoietic Stem Cell Transplantation for Children with Sickle Cell Disease and Thalassemia: A Consensus Statement from the Second Pediatric Blood and Marrow Transplant Consortium International Conference on Late Effects after Pediatric Hematopoietic Stem Cell Transplantation. Biol Blood Marrow Transplant. 2017;23(4):552-561. PMID:28065838
45.	Fischer-Valuck BW, Chen I, Srivastava AJ, Floberg JM, Rao YJ, King AA, Shinohara ET, Perkins SM. Assessment of the treatment approach and survival outcomes in a modern cohort of patients with atypical teratoid rhabdoid tumors using the National Cancer Database. Cancer. 2017;123(4):682-687. PMID:27861763
46.	King AA, Vesely SK, Elwood J, Basso J, Carson K, Sung L. The American Society of Hematology Clinical Research Training Institute is associated with high retention in academic hematology. Blood. 2016;128(25):2881-2885. PMCID:PMC5179335 PMID:27784672
47.	DeBaun MR, King AA. Prevention of central nervous system sequelae in sickle cell disease without evidence from randomized controlled trials: the case for a team-based learning collaborative. Hematology Am Soc Hematol Educ Program. 2016;2016(1):632-639. PMID:27913539
48.	Fields ME, Hoyt-Drazen C, Abel R, Rodeghier MJ, Yarboi JM, Compas BE, King AA. A pilot study of parent education intervention improves early childhood development among toddlers with sickle cell disease. Pediatr Blood Cancer. 2016;63(12):2131-2138. PMCID:PMC5344022 PMID:27509845
49.	Housten AJ, Abel RA, Lindsey T, King AA. Feasibility of a Community-Based Sickle Cell Trait Testing and Counseling Program. J Health Dispar Res Pract. 2016;9(3). PMCID:PMC5070660 PMID:27774352
50.	Hsu LL, Green NS, Donnell Ivy E, Neunert CE, Smaldone A, Johnson S, Castillo S, Castillo A, Thompson T, Hampton K, Strouse JJ, Stewart R, Hughes T, Banks S, Smith-Whitley K, King A, Brown M, Ohene-Frempong K, Smith WR, Martin M. Community Health Workers as Support for Sickle Cell Care. Am J Prev Med. 2016;51(1 Suppl 1):S87-98. PMCID:PMC4918511 PMID:27320471
51.	Denlinger CS, Ligibel JA, Are M, Baker KS, Broderick G, Demark-Wahnefried W, Friedman DL, Goldman M, Jones LW, King A, Ku GH, Kvale E, Langbaum TS, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Peppercorn J, Rodriguez MA, Ruddy KJ, Sanft T, Silverman P, Smith S, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian NR, Freedman-Cass DA. NCCN Guidelines Insights: Survivorship, Version 1.2016. J Natl Compr Canc Netw. 2016;14(6):715-24. PMID:27283164
52.	Blaisdell LL, Zellner JA, King AA, Faustman E, Wilhelm M, Hudak ML, Annett RD. The National Children's Study: Recruitment Outcomes Using an Enhanced Household-Based Approach. Pediatrics. 2016;137 Suppl 4:S219-30. doi:10.1542/peds.2015-4410C PMID:27251868
53.	Drazen CH, Abel R, Gabir M, Farmer G, King AA. Prevalence of Developmental Delay and Contributing Factors Among Children With Sickle Cell Disease. Pediatr Blood Cancer. 2016;63(3):504-10. doi:10.1002/pbc.25838 PMID:26575319
54.	King AA, Kamani N, Bunin N, Sahdev I, Brochstein J, Hayashi RJ, Grimley M, Abraham A, Dioguardi J, Chan KW, Douglas D, Adams R, Andreansky M, Anderson E, Gilman A, Chaudhury S, Yu L, Dalal J, Hale G, Cuvelier G, Jain A, Krajewski J, Gillio A, Kasow KA, Delgado D, Hanson E, Murray L, Shenoy S. Successful matched sibling donor marrow transplantation following reduced intensity conditioning in children with hemoglobinopathies. Am J Hematol. 2015;90(12):1093-8. PMID:26348869
55.	Yarboi J, Compas BE, Brody GH, White D, Rees Patterson J, Ziara K, King A. Association of social-environmental factors with cognitive function in children with sickle cell disease. Child Neuropsychol. 2015;1-18. doi:10.1080/09297049.2015.1111318 PMCID:PMC4867297 PMID:26568287
56.	Housten AJ, Abel RA, Dadekian J, Schwieterman K, Jason D, King AA. Youth with Sickle Cell Disease: Genetic and Sexual Health Education Needs. Am J Health Behav. 2015;39(6):856-65. doi:10.5993/AJHB.39.6.13 PMCID:PMC4741381 PMID:26450553
57.	Andreotti C, King AA, Macy E, Compas BE, DeBaun MR. The Association of Cytokine Levels With Cognitive Function in Children With Sickle Cell Disease and Normal MRI Studies of the Brain. J Child Neurol. 2015;30(10):1349-53. doi:10.1177/0883073814563140 PMCID:PMC4466214 PMID:25512362
58.	Beverung LM, Strouse JJ, Hulbert ML, Neville K, Liem RI, Inusa B, Fuh B, King A, Meier ER, Casella J, DeBaun MR, Panepinto JA, SIT trial investigators. Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy. Am J Hematol. 2015;90(2):139-43. doi:10.1002/ajh.23877 PMCID:PMC4304929 PMID:25345798
59.	Abel RA, Cho E, Chadwick-Mansker KR, D'Souza N, Housten AJ, King AA. Transition Needs of Adolescents With Sickle Cell Disease. Am J Occup Ther. 2015;69(2):6902350030p1-5. doi:10.5014/ajot.2015.013730 PMCID:PMC4480057 PMID:26122692
60.	King AA, Rodeghier MJ, Panepinto JA, Strouse JJ, Casella JF, Quinn CT, Dowling MM, Sarnaik SA, Thompson AA, Woods GM, Minniti CP, Redding-Lallinger RC, Kirby-Allen M, Kirkham FJ, McKinstry R, Noetzel MJ, White DA, Kwiatkowski JK, Howard TH, Kalinyak KA, Inusa B, Rhodes MM, Heiny ME, Fuh B, Fixler JM, Gordon MO, DeBaun MR. Silent cerebral infarction, income, and grade retention among students with sickle cell anemia. Am J Hematol. 2014;89(10):E188-92. doi:10.1002/ajh.23805 PMCID:PMC4261188 PMID:25042018
61.	Widemann BC, Babovic-Vuksanovic D, Dombi E, Wolters PL, Goldman S, Martin S, Goodwin A, Goodspeed W, Kieran MW, Cohen B, Blaney SM, King A, Solomon J, Patronas N, Balis FM, Fox E, Steinberg SM, Packer RJ. Phase II trial of pirfenidone in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas. Pediatr Blood Cancer. 2014;61(9):1598-602. doi:10.1002/pbc.25041 PMID:24753394
62.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Dizon D, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Peppercorn J, Raza M, Rodriguez MA, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian NR, Freedman-Cass DA, National comprehensive cancer network. Survivorship: healthy lifestyles, version 2.2014. J Natl Compr Canc Netw. 2014;12(9):1222-37. PMID:25190692
63.	DeBaun MR, Gordon M, McKinstry RC, Noetzel MJ, White DA, Sarnaik SA, Meier ER, Howard TH, Majumdar S, Inusa BP, Telfer PT, Kirby-Allen M, McCavit TL, Kamdem A, Airewele G, Woods GM, Berman B, Panepinto JA, Fuh BR, Kwiatkowski JL, King AA, Fixler JM, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Dixon N, Gonzalez CE, Kalinyak KA, Quinn CT, Strouse JJ, Miller JP, Lehmann H, Kraut MA, Ball WS Jr, Hirtz D, Casella JF. Controlled trial of transfusions for silent cerebral infarcts in sickle cell anemia. N Engl J Med. 2014;371(8):699-710. doi:10.1056/NEJMoa1401731 PMID:25140956
64.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Dizon D, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Peppercorn J, Raza M, Rodriguez MA, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian NR, Freedman-Cass DA. Survivorship: immunizations and prevention of infections, version 2.2014. J Natl Compr Canc Netw. 2014;12(8):1098-111. PMID:25099442
65.	King AA, DiPersio JF. Reconsideration of age as a contraindication for curative therapy of sickle cell disease. JAMA. 2014;312(1):33-34. doi:10.1001/jama.2014.7193 PMID:25058214
66.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian NR, Freedman-Cass DA, National Comprehensive Cancer Network. Survivorship: cognitive function, version 1.2014. J Natl Compr Canc Netw. 2014;12(7):976-86. PMID:24994918
67.	Hensler M, Wolfe K, Lebensburger J, Nieman J, Barnes M, Nolan W, King A, Madan-Swain A. Social skills and executive function among youth with sickle cell disease: a preliminary investigation. J Pediatr Psychol. 2014;39(5):493-500. doi:10.1093/jpepsy/jst138 PMCID:PMC4027877 PMID:24431467
68.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D. Survivorship: fatigue, version 1.2014. J Natl Compr Canc Netw. 2014;12(6):876-87. PMID:24925198
69.	King A, Shenoy S. Evidence-based focused review of the status of hematopoietic stem cell transplantation as treatment of sickle cell disease and thalassemia. Blood. 2014;123(20):3089-94; quiz 3210. doi:10.1182/blood-2013-01-435776 PMID:24511087
70.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D, National Comprehensive Cancer Network. Survivorship: sleep disorders, version 1.2014. J Natl Compr Canc Netw. 2014;12(5):630-42. PMID:24812132
71.	Denlinger CS, Ligibel JA, Are M, Baker KS, Demark-Wahnefried W, Friedman DL, Goldman M, Jones L, King A, Ku GH, Kvale E, Langbaum TS, Leonardi-Warren K, McCabe MS, Melisko M, Montoya JG, Mooney K, Morgan MA, Moslehi JJ, O'Connor T, Overholser L, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D, National Comprehensive Cancer Network. Survivorship: pain version 1.2014. J Natl Compr Canc Netw. 2014;12(4):488-500. PMID:24717568
72.	Denlinger CS, Carlson RW, Are M, Baker KS, Davis E, Edge SB, Friedman DL, Goldman M, Jones L, King A, Kvale E, Langbaum TS, Ligibel JA, McCabe MS, McVary KT, Melisko M, Montoya JG, Mooney K, Morgan MA, O'Connor T, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D, National comprehensive cancer network. Survivorship: sexual dysfunction (male), version 1.2013. J Natl Compr Canc Netw. 2014;12(3):356-63. PMID:24616541
73.	Hoyt Drazen C, Abel R, Lindsey T, King AA. Development and feasibility of a home-based education model for families of children with sickle cell disease. BMC Public Health. 2014;14(1):116. doi:10.1186/1471-2458-14-116 PMID:24499305
74.	King AA, Strouse JJ, Rodeghier MJ, Compas BE, Casella JF, McKinstry RC, Noetzel MJ, Quinn CT, Ichord R, Dowling MM, Miller JP, Debaun MR. Parent education and biologic factors influence on cognition in sickle cell anemia. Am J Hematol. 2014;89(2):162-7. doi:10.1002/ajh.23604 PMID:24123128
75.	Denlinger CS, Carlson RW, Are M, Baker KS, Davis E, Edge SB, Friedman DL, Goldman M, Jones L, King A, Kvale E, Langbaum TS, Ligibel JA, McCabe MS, McVary KT, Melisko M, Montoya JG, Mooney K, Morgan MA, O'Connor T, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D, National compresensive cancer network. Survivorship: sexual dysfunction (female), version 1.2013. J Natl Compr Canc Netw. 2014;12(2):184-92. PMID:24586080
76.	Denlinger CS, Carlson RW, Are M, Baker KS, Davis E, Edge SB, Friedman DL, Goldman M, Jones L, King A, Kvale E, Langbaum TS, Ligibel JA, McCabe MS, McVary KT, Melisko M, Montoya JG, Mooney K, Morgan MA, O'Connor T, Paskett ED, Raza M, Syrjala KL, Urba SG, Wakabayashi MT, Zee P, McMillian N, Freedman-Cass D. Survivorship: introduction and definition. Clinical practice guidelines in oncology. J Natl Compr Canc Netw. 2014;12(1):34-45. PMID:24453291
77.	King AA, Heyer GL. Moving from gene discovery to clinical trials in Hutchinson-Gilford progeria syndrome. Neurology. 2013;81(5):408-9. doi:10.1212/WNL.0b013e31829d87cd PMID:23897868
78.	DeBaun MR, Sarnaik SA, Rodeghier MJ, Minniti CP, Howard TH, Iyer RV, Inusa B, Telfer PT, Kirby-Allen M, Quinn CT, Bernaudin F, Airewele G, Woods GM, Panepinto JA, Fuh B, Kwiatkowski JK, King AA, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Sabio H, Gonzalez CE, Saccente SL, Kalinyak KA, Strouse JJ, Fixler JM, Gordon MO, Miller JP, Noetzel MJ, Ichord RN, Casella JF. Associated risk factors for silent cerebral infarcts in sickle cell anemia: low baseline hemoglobin, sex, and relative high systolic blood pressure. Blood. 2012;119(16):3684-90. doi:10.1182/blood-2011-05-349621 PMCID:PMC3335377 PMID:22096242
79.	Peters-Lawrence MH, Bell MC, Hsu LL, Osunkwo I, Seaman P, Blackwood M, Guillaume E, Bellevue R, Krishnamurti L, Smith WR, Dampier CD, Minniti CP, Sickle Cell Disease Clinical Research Network (SCDCRN).. Clinical trial implementation and recruitment: lessons learned from the early closure of a randomized clinical trial. Contemp Clin Trials. 2012;33(2):291-7. PMCID:PMC3577351 PMID:22155024
80.	Miller ST, Kim HY, Weiner D, Wager CG, Gallagher D, Styles L, Dampier CD, Investigators of the Sickle Cell Disease Clinical Research Network (SCDCRN). Inpatient management of sickle cell pain: a 'snapshot' of current practice. Am J Hematol. 2012;87(3):333-6. PMID:22231150
81.	Berg C, Edwards DF, King A. Executive function performance on the children's kitchen task assessment with children with sickle cell disease and matched controls. Child Neuropsychol. 2012;18(5):432-48. doi:10.1080/09297049.2011.613813 PMID:21961955
82.	Creach KM, Rubin JB, Leonard JR, Limbrick DD, Smyth MD, Dacey R, Rich KM, Dowling JL, Grubb RL Jr, Linette GP, King AA, Michalski JM, Park TS, Perry A, Simpson JR, Mansur DB. Oligodendrogliomas in children. J Neurooncol. 2012;106(2):377-82. doi:10.1007/s11060-011-0674-6 PMID:21842314
83.	Mansur DB, Rubin JB, Kidd EA, King AA, Hollander AS, Smyth MD, Limbrick DD, Park TS, Leonard JR. Radiation therapy for pilocytic astrocytomas of childhood. Int J Radiat Oncol Biol Phys. 2011;79(3):829-34. doi:10.1016/j.ijrobp.2009.11.015 PMID:20421157
84.	Casella JF, King AA, Barton B, White DA, Noetzel MJ, Ichord RN, Terrill C, Hirtz D, McKinstry RC, Strouse JJ, Howard TH, Coates TD, Minniti CP, Campbell AD, Vendt BA, Lehmann H, Debaun MR. Design of the silent cerebral infarct transfusion (SIT) trial. Pediatr Hematol Oncol. 2010;27(2):69-89. doi:10.3109/08880010903360367 PMID:20201689
85.	Lim AN, Lange BJ, King AA. Rehabilitation for survivors of pediatric brain tumors: our work has just begun Future Neurology. 2010;5(1):135-146.
86.	Morris B, Partap S, Yeom K, Gibbs IC, Fisher PG, King AA. Cerebrovascular disease in childhood cancer survivors: A Children's Oncology Group Report. Neurology. 2009;73(22):1906-13. doi:10.1212/WNL.0b013e3181c17ea8 PMCID:PMC2788797 PMID:19812380
87.	Armstrong GT, Liu Q, Yasui Y, Huang S, Ness KK, Leisenring W, Hudson MM, Donaldson SS, King AA, Stovall M, Krull KR, Robison LL, Packer RJ. Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study. J Natl Cancer Inst. 2009;101(13):946-58. doi:10.1093/jnci/djp148 PMCID:PMC2704230 PMID:19535780
88.	King AA, Noetzel M, White DA, McKinstry RC, Debaun MR. Blood transfusion therapy is feasible in a clinical trial setting in children with sickle cell disease and silent cerebral infarcts. Pediatr Blood Cancer. 2008;50(3):599-602. doi:10.1002/pbc.21338 PMID:17985350
89.	Dean JB, Hayashi SS, Albert CM, King AA, Karzon R, Hayashi RJ. Hearing loss in pediatric oncology patients receiving carboplatin-containing regimens. J Pediatr Hematol Oncol. 2008;30(2):130-4. doi:10.1097/MPH.0b013e31815d1d83 PMID:18376265
90.	King AA, DeBaun MR, White DA. Need for cognitive rehabilitation for children with sickle cell disease and strokes. Expert Rev Neurother. 2008;8(2):291-6. doi:10.1586/14737175.8.2.291 PMID:18271713
91.	King AA, White DA, McKinstry RC, Noetzel M, Debaun MR. A pilot randomized education rehabilitation trial is feasible in sickle cell and strokes. Neurology. 2007;68(23):2008-11. doi:10.1212/01.wnl.0000264421.24415.16 PMID:17548550
92.	Leonard JR, Perry A, Rubin JB, King AA, Chicoine MR, Gutmann DH. The role of surgical biopsy in the diagnosis of glioma in individuals with neurofibromatosis-1. Neurology. 2006;67(8):1509-12. doi:10.1212/01.wnl.0000240076.31298.47 PMID:17060590
93.	Field JJ, Mason PJ, An P, Kasai Y, McLellan M, Jaeger S, Barnes YJ, King AA, Bessler M, Wilson DB. Low frequency of telomerase RNA mutations among children with aplastic anemia or myelodysplastic syndrome. J Pediatr Hematol Oncol. 2006;28(7):450-3. doi:10.1097/01.mph.0000212952.58597.84 PMID:16825992
94.	King A, Herron S, McKinstry R, Bacak S, Armstrong M, White D, DeBaun M. A multidisciplinary health care team's efforts to improve educational attainment in children with sickle-cell anemia and cerebral infarcts. J Sch Health. 2006;76(1):33-7. doi:10.1111/j.1746-1561.2006.00064.x PMID:16457683
95.	King AA, Tang S, Ferguson KL, DeBaun MR. An education program to increase teacher knowledge about sickle cell disease. J Sch Health. 2005;75(1):11-4. PMID:15776876
96.	Mosse Y, Greshock J, King A, Khazi D, Weber BL, Maris JM. Identification and high-resolution mapping of a constitutional 11q deletion in an infant with multifocal neuroblastoma. Lancet Oncol. 2003;4(12):769-71. PMID:14662434
97.	King A, Listernick R, Charrow J, Piersall L, Gutmann DH. Optic pathway gliomas in neurofibromatosis type 1: the effect of presenting symptoms on outcome. Am J Med Genet A. 2003;122A(2):95-9. doi:10.1002/ajmg.a.20211 PMID:12955759
98.	Herron S, Bacak SJ, King A, DeBaun MR. Inadequate recognition of education resources required for high-risk students with sickle cell disease. Arch Pediatr Adolesc Med. 2003;157(1):104. PMID:12517203
99.	King AA, Debaun MR, Riccardi VM, Gutmann DH. Malignant peripheral nerve sheath tumors in neurofibromatosis 1. Am J Med Genet. 2000;93(5):388-92. PMID:10951462
100.	DeBaun MR, King AA, White N. Hypoglycemia in Beckwith-Wiedemann syndrome. Semin Perinatol. 2000;24(2):164-71. PMID:10805171
101.	King A, Gutmann DH. The question of familial meningiomas and schwannomas: NF2B or not to be? Neurology. 2000;54(1):4-5. PMID:10636116